I don't know her personally--but I understand her
PART II
PART III
MY NOTES
Hey,
go ahead, go to the RSDSA and other fine organizations. Even doctor
that treat it what they neglect to tell you is those "smashing success
stories, seem to be rare.
Usually
somewhere between here and there. But we do not, have, and I've seen
most cases fall somewhere in the middle. I hope you'll take the time,
if not at work--at home even, to watch
MORE PHOTOS:
How do you explain to the nice new nerdy medical student what RSD is? They reach for a Blackberry???
How do you, most of all, explain that shit to your family when they barely give a shit, what RSD is?
 |
| RIGHT FOOT SPASM |
Like the rest of this God-forsaken country they hear "Severe form of chronic pain," and equate you with being a freaking drug addict--you tell the provider you have RSD, and unless you show them photos, videos, and provided you maybe get a referral--to go to some wonky pain clinic with wild assed "pain doctor:" who claims to specialize in RSD.
12 doctors are registered with the RSDSA, and many are no better than their counterparts who claim expertise.
Truth be told, I don't think anyone understands it save the the souls who suffer from this shitty disorder. And any doctor who truly has ANY answers that people who suffer from this are so mother fucking desperate for. You look at that heel, ok?
Then imagine you have had your leg scalded with hot water, then lit on fire. And none of the following are available:
- water to douse the flames
- even a fire extinguisher
- and it's illegal for you to even yell "Fire" because no one else can see the damned flames.
- Now add the "sore" to it, that when you stand up feels like a beaver has started with your ankle and is gnawing at your foot, for no damned good reason,
- Then try and clean the house, take the trash out (when going to the bathroom produces breathtaking levels of pain that you want to vomit or just spend 25-cents. But you don't ever consider that 25-cents a viable option because your FRIENDS give a damn, even if your family isn't worth shit. I have an able-bodied step-sister, 44 years old, who moved back home with my STEP mother and father, because "she needs some place to go because she broke up with her boyfriend."
- And I am 6 months away from being homeless because my housing voucher and I lucked out with the four years where I've been staying. No other family members I care to have go through my things and screw with my head,,,,
- Not to mention they wouldn't know what to do with an RSD patient if even the protocol whacked them over the head, and the doctor that made this mess manhandled me to begin with. No sedation with an already painful, swollen, and very hot leg. I had to swallow my vomit.
People get desperate that are on disability like myself, and the few that still have able to get a credit card, or things like assistance from family members, they
will fly halfway across the freaking world to chase a treatments that
are not proven to work-or even proven to be haphazard and dangerous at
best....One woman makes like $150 less than I do (and I get $903 after
this year's generous 1.02% COLI raise.
She
spends her whole disability check on compounded meds and credit card
payments. At less than $10,000 per year, she owes over $22K. That is
lunacy.
That
is what the severe constant pain of RSD will do to some. Others--check
out the Catalyst video, or my own. I'll try anything from rubs, but I
want my aquatic therapy back dammit!!!
I was friggin' happy in the pool, as exhausting as it was!!!
What many fail to understand, it's not all meds!!!! They're important, but....
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| Talk about producing cramps!!! |
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| Total relaxation!!! I grew up in the pools-I fell asleep doing this exercise......they had to wake me UP!!! Never happens these |
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| This is on an ugly day, and both legs hurt...one from lack of blood flow the other from swelling and sensitivity. I don't normally swell this dramatically |
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| Looks easy--arthritic knees + RSD = bit more of a challenge |
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