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Sunday, April 22, 2012

A WORD TO THE WISE-IT'S IN THE TERMINOLOGY

 


A WORD TO THE WISE: If you are so painful you can't tolerate linens on your skin, see an RSD/CRPS (Reflex Sympathetic Dystrophy/Complex Regional Pain Syndrome) trained and EXPERIENCED, TO START:

Here's the vocabulary list for
Neurologist
Neurosurgeon
pain management doctor
pain medicine doctor   
A Physical Medicine & Rehabilitation Clinic
A Anesthesiology Pain Clinic
An Interventional Pain Management Doctor pain psychologist
therapeutic coping skills
"psychotropic" medication, such as a
mood-stabilizer 
anti-psychotic
anti-anxiety
antidepressant
pain MEDICINE
anticonvulsants
anti-spasmodics
opiates 
opoids
narcotics
NSAIDS
Tylenol-that you know-but can you take it; if you don't care, call 911 immediately

Who is to provide you with a "safety zone" of WHICH OTC stuff you can safely use, on all this garbage that won't wreck your liver, kidneys, gut, etc.  Or cause dangerous interactions.  PCP's don't want you

KNOW WHAT YOUR GOALS are.

Do you want:
  • Physical and Occupational and other restorative Therapies that will get you moving
  • Just some meds "for when it gets really bad"? (boldfaced-doctor's hackles will be FLASHING (red and blue usually)
  • What are you doing to assume the most functional status you are able----here's what I mean:
 The decision to go on opiates: KNOW WHAT YOU ARE STEPPING in

And A WORD OF CAUTION:  DON'T LET A DOC PUT YOU ON LONG-ACTING OPIATES/NARCOTICS, do a few nerve block and spinal injections, and "Cold turkey" you off any type of narcotic taken longer than 2 weeks.  You will be sick as hell, labeled a drug addict in all likelihood, and then before taking SUBOXONE/SUBUTEX (even though no naltraxone), know a teeny fact they aren't gonna advertise to you:


http://www.suboxone.com/


And it turns your bowels to stone.

And a doctor who offers you naltraxone to "help the pain":


Naltraxone is used for:


Naltrexone(nal trex' one)

Warning

Naltrexone may cause liver damage when taken in large doses. It is not likely that naltrexone will cause liver damage when taken in recommended doses. Tell your doctor if you have or have ever had hepatitis or liver disease. If you experience any of the following symptoms, stop taking naltrexone and call your doctor immediately: excessive tiredness,unusual bleeding or bruising, loss of appetite, pain in the upper right part of your stomach that lasts more than a few days, light-colored bowel movements,dark urine, or yellowing of the skin or eyes.

Keep all appointments with your doctor and the laboratory. Your doctor may order certain laboratory tests to check your body's response to naltrexone.

Talk to your doctor about the risks of taking naltrexone.

Why is this medication prescribed?

Naltrexone is used along with counseling and social support to help people who have stopped drinking alcohol and using street drugs continue to avoid drinking or using drugs. Naltrexone should not be used to treat people who are still using street drugs or drinking large amounts of alcohol. Naltrexone is in a class of medications called opiate antagonists. It works by decreasing the craving for alcohol and blocking the effects of opioid medications and opioid street drugs.

How should this medicine be used?

Naltrexone comes as a tablet to take by mouth either at home or under supervision in a clinic or treatment center. When naltrexone is taken at home, it is usually taken once a day with or without food. 

Fuckers at the hospital dumped FOUR DOSES A DAY IN ME, AND FINALL "HALVED IT TO TWO."  MY ALREADY WORKING GUT JUST TODAY, UH, LET'S SEE, ALMOST TEN FULL DAYS AFTER DISCHARGE HAVE FINALLY STARTED WORKING NORMALLY AGAIN! 

And I get labeled as mental for being a wee bit "angry?"

 
When naltrexone is taken in a clinic or treatment center, it may be taken once a day, once every other day, once every third day, or once every day except Sunday. Follow the directions on your prescription label carefully, and ask your doctor or pharmacist to explain any part you do not understand. Take naltrexone exactly as directed. Do not take more or less of it or take it more often than prescribed by your doctor.
Naltrexone is only helpful when it is used as part of an addiction treatment program. It is important that you attend all counseling sessions, support group meetings, education programs, or other treatments recommended by your doctor.

Naltrexone will help you avoid using drugs and alcohol, but it will not prevent or relieve the withdrawal symptoms that may occur when you stop using these substances. Instead, naltrexone may cause or worsen withdrawal symptoms. You should not take naltrexone if you have recently stopped using opioid medications or opioid street drugs and are now experiencing withdrawal symptoms.

Naltrexone will help you avoid drugs and alcohol only as long as you are taking it. Continue to take naltrexone even if you feel well. Do not stop taking naltrexone without talking to your doctor.

Other uses for this medicine

This medication may be sometimes prescribed for other uses; ask your doctor or pharmacist for more information.

What special precautions should I follow?

Before taking naltrexone,
  • tell your doctor and pharmacist if you are allergic to naltrexone naloxone, other opioid medications, or any other medications.
  • tell your doctor if you are taking any opioid (narcotic) medications or street drugs including levomethadyl acetate (LAAM, ORLAAM) (not available in the US), or methadone (Dolophine, Methadose); and certain medications for diarrhea, cough, or pain. Also tell your doctor if you have taken any of these medications in the past 7 to 10 days. Ask your doctor if you are not sure if a medication you have taken is an opioid. Your doctor may order certain tests to see if you have taken any opioid medications or used any opioid street drugs during the past 7 to 10 days. Your doctor will tell you not to take naltrexone if you have taken or used opioids in the past 7 to 10 days.
  • do not take any opioid medications or use opioid street drugs during your treatment with naltrexone. Naltrexone blocks the effects of opioid medications and opioid street drugs. You may not feel the effects of these substances if you take or use them at low or normal doses. If you take or use higher doses of opioid medications or drugs during your treatment with naltrexone, it may cause serious injury, coma (long-lasting unconscious state), or death.
  • you should know that if you took opioid medications before your treatment with naltrexone, you may be more sensitive to the effects of these medications after you finish your treatment. After you finish your treatment, tell any doctor who may prescribe medications for you that you were previously treated with naltrexone.
  • tell your doctor what other prescription and nonprescription medications, vitamins, nutritional supplements, and herbal products you are taking or plan to take. Be sure to mention disulfiram (Antabuse) and thioridazine. Your doctor may need to change the doses of your medications or monitor you carefully for side effects.
  • tell your doctor if you have or have ever had depression or kidney disease.
  • tell your doctor if you are pregnant, plan to become pregnant, or are breast-feeding. If you become pregnant while taking naltrexone, call your doctor.
  • if you need medical treatment or surgery, including dental surgery, tell the doctor or dentist that you are taking naltrexone. Wear or carry medical identification so that healthcare providers who treat you in an emergency will know that you are taking naltrexone.
  • you should know that people who overuse drugs or alcohol often become depressed and sometimes try to harm or kill themselves. Receiving naltrexone does not decrease the risk that you will try to harm yourself. You or your family should call the doctor right away if you experience symptoms of depression such as feelings of sadness, anxiousness, hopelessness, guilt, worthlessness, or helplessness, or thinking about harming or killing yourself or planning or trying to do so. Be sure that your family knows which symptoms may be serious so they can call the doctor right away if you are unable to seek treatment on your own.

What special dietary instructions should I follow?

Unless your doctor tells you otherwise, continue your normal diet.

What should I do if I forget a dose?

Take the missed dose as soon as you remember it. However, if it is almost time for your next dose, skip the missed dose and continue your regular dosing schedule. Do not take a double dose to make up for a missed one.

What side effects can this medication cause?

Naltrexone may cause side effects. Tell your doctor if any of these symptoms are severe or do not go away:
  • nausea
  • vomiting
  • stomach pain or cramping
  • diarrhea
  • constipation
  • loss of appetite
  • headache
  • dizziness
  • anxiety
  • nervousness
  • irritability
  • tearfulness
  • difficulty falling or staying asleep
  • increased or decreased energy
  • drowsiness
  • muscle or joint pain
  • rash
Some side effects can be serious. If you experience any of these symptoms or those listed in the IMPORTANT WARNING section, call your doctor immediately:
  • confusion
  • hallucinations (seeing things or hearing voices that do not exist)
  • blurred vision
  • severe vomiting and/or diarrhea
Naltrexone may cause other side effects. Call your doctor if you have any unusual problems while taking this medication.

 http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0000853/

One rare case where the manufacturer tells you the truth before your doc does.

1 comment:

  1. Hi Jennifer, and thanks for the above!

    I just started on naltrexone in water (1mg/1L, 3ml orally 3x daily), combined with methadone (10mg 3x daily) for CRPS. The naltrexone is considered an ultra-low-dose, strictly to prevent (hopefully) my building up a tolerance (or worse, becoming addicted) to the methadone. This is replacing the Vicodin and Lyrica that had been discontinued (the former because I live with a Vicodin addict with Fibro, the latter because of the high cost).

    My pain doc is also considered an expert with CRPS/RDS (I prefer CRPS, which for me translates to CRaP Sucks, for the effect it has had on my life), and he had suggested going to the naltrexone-methadone a few months ago. For obvious reasons, I was skittish about the methadone, plus it effectively ends my career as a trucker (which was pretty much over anyway when this started about 18 months ago). So, I did all the research I could.

    I can't say for certain if this will work or not for the pain, as I just started, but I'm hoping it will, even if just enough to make the pain at least barely tolerable. It does seem to work a bit better right now than the Vicodin did, though I want the Lyrica back in the worst way still. That at least cut the pain by half, to about the level of passing a kidney stone (which I've done twice, thus the comparison).

    I'm keeping my fingers crossed that this works, all the literature and case studies I read seem to indicate it will, at least enough so I can function somewhat. I'm still looking for something that will allow me to return to work. I've been working since age 14, and at age 50, this whole not-working thing stinks after 18 months.

    ReplyDelete