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Friday, July 20, 2012

CRPS - RSD LONG-TERM HEALTH STUDY

CRPS - RSD LONG-TERM HEALTH STUDY


NEW STUDY NEEDS PARTICIPANTS

The Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) has launched an Internet-based study entitled: Long-term Health Effects of CRPS: A 20- year Cross-sectional and Longitudinal, Observational Cohort Study, funded by a grant from the Brodsky Family Foundation.

Anyone with the diagnosis of CRPS Types I and II can participate via a link on RSDSA's website, www.rsds.org or from the study website (www.crpssurvey.org). Potential participants, who are not familiar or comfortable with Internet-based communication, can contact the study's Project Manager to obtain paper forms for registration, consent and enrollment. Participation is voluntary and anyone can withdraw from the study whenever they wish.

Participants do not need to submit medical records to register for the study, but we may request medical records to confirm information in the database. All questionnaires and records are confidential and securely held according to HIPAA and WIRB provisions. RSDSA hopes that the new study will attract many more participants who will share their experience with CRPS for the benefit of all.

For questions or additional information, please contact the RSDSA Office toll free: 877-662-7737 or email: info@rsds.org 

Click Here to get started:
RSDSA LONG TERM STUDY
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