Complex Regional Pain Syndrome:This is MY life, doc!: DO I ASK THE SURGEON? WHO/WHAT NOW

I have RSD/CRPS as a primary diagnosis--only after I went through hell and the docs managing my pain, my neurologist, even a neurosurgeon, all subitted letters to my PCP, oh-my shrink too=saying this was not a "ficticious disorder, somatization or any REACTION TO STRESS:" as they'd previously submitted to my insurance compamy--REGENCE BLUE CROSS MEDADVANTAGE--and there is NO ONE ELSE who will accept a COMPLEX patient like myself, especially with Medicaid as a secondary!

And to get the RSD as my primary diagnosis, not only did I have to fight, but----I had to have help:

I KNOW I am wasting way, my gums bleed when I brush and my sugars are so chronically low, they HAD to order a home health aide to assist with showers, etc. and I think my body's reaction speaks fo itself--and yes, chronic skin infections and breakdown.

I have a hard time keeping food and fluids down, so PCP #1 tossed a lot of (and some pricey and very ineffective antinausea medications--just random ones that I hadn't asked for: I brought up concerns of weight loss the pharmacy would invariably deliver SOMETHING for nausea. Phenergan (promethazine) works-leave it alone for GOD's SAKE! Finally, I directed the pharmacist NOT to have anything else delivered;

WHY DO THEY NOT GET THE NAUSEA IS RELATED TO PAIN--AND IT'S MORE OF TOTAL LOSS OF APPETITE, AS OPPOSED TO NAUSEA??? Is it that hard to understand????

Ketamine CREAM early on--I might not even be posting this.

My current PCP only congratulates me on the weight loss, and as a former nurse, I am quite aware, the impaired healing that has basically left me bedridden--interrupting my aquatic therapy that ws going so well-what, blind, or God knows.

There is freedom in forgiveness-I hold no ill will towards the surgeon who told me to ice. Had it been the IT band syndrome as he thought, but I keppt trying to say "Hey, the symptoms are getting wonky, I'm not sure that's what this is." But the fellow operates two days a week on at least fifteen patients, and sees about FIFTY patients--NOT UNCOMMON.

It' when my PCP get's paid $550 for a 45 minute office call, spends maybe 15 with me and instead of being "RSD related care" or even the HONEST "Leg pain & malaise" another PCP put down, they put down eventually CHRONIC PAIN SYNDROME- IT IS NOT WHAT YOU THINK!

See the pages: labeled "The Bane I & II-as humor can accomlish what no doctor can accomplish.

Do I ask the SURGEON WHO IS only supposed to put in the portacath for help with nutritional support-and would it be TPN--if you have a few minutes, please watch the one vlog I've made public: I am not "doing this to myself, and the RSD doc said, accurately,

"This really isn't what I do so, really the question is: 'Where is your internist's head? He needs to address it.' "

Very telling of why I avoid my internist is missing-BADLY. When he said he did not know anything about RSD, that was truthful and accurate.

About malnutrition, I suppose I should have asked many more questions.

Pray that he helps, that is what I hope for. I have been to hell and ba

Blessings to all

(still praying 4 u Kathy!!!)

Beginning of January