Complex Regional Pain Syndrome:This is MY life, doc!: WEBCAM PHOTOS

I welcome readers: those here to download and cheat, my apologies:

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Friday, June 29, 2012

WEBCAM PHOTOS

Cecelia Yinger likes this. (please)

Lisa Rogers Flaherty feel better Jen ♥

Sunday at 10:46pm ·
Aunt Bee Crps Jen, . Sending prayers.

Yesterday at 7:38am
Sami Smith JJ - i was just notified that the new patient coordinator with our doc wants to speak with you - i gave her your website - her name is stephanie - 941-488-5224; just call asap; the rest we will figure out...SAMI

20 hours ago 1
Cecelia Yinger I am praying for you Jen...I love you. <3

June 14, 2012

http://www.change.org/petitions/the-president-of-the-united-states-cover-ketamine-infusions-for-people-with-crps-rsd?utm_campaign=friend_inviter_action_box&utm_medium=facebook&utm_source=share_petition

To those seeing this, I am posting my videos. I am not hiding my RSD. Today, I am going to begin posting what I have been through here. I am now having to use a wheelchair. I need home health and not one of my physicians has looked at it in 2 months. It costs me-But only pride. They are what I have been through in a 14 months struggle with RSD. I am now 100 "Indepently mediated pain. I have fought off the urge to end my life because of the destruction this has caused, and am soon to be wheelchair-bound.. Is it pretty at 40 that my house is filled with medical equpipment? That I use a bench to shower: really I need help with it, but no physician will agree on who writes THAT. Being so exhausted that my free fall in weight has reached about 80 pounds-I can't pay for Enure-not covered, it i a supplement? Not when eating i difficult. I live this way because NONE of the ketamine NASAL spray or cream is covered-or the marijuana I must smoke in order to ATTEMPT to not lose my head when EVERY noise, sound, or stumulus makes 10 not the level of my sharp, firey, BODY-WIDE RSD/CRPS. I will require 24 hour care likely before I am 45 because every day, my pain is taking it's toll on my body. I also have a website should anyone be interested.. But my situation can go back to my worst problem being a pinched nerve (sciatica) in my back, I don't notice it from the Body-wide RSD/CRPS, I don't live-I EXIST. I went into this 14 months ago and the nightmare has not showed any signs of stopping. Ketamine IV would offer me a CHANCE at a "normal life." But nope, instead my MedAdvantage insurance has been told NO in ketamine. Meanwhile I have to pray for a good day while the world acts a if I have chosen it or I want to live like this!

Picture you working as a nurse, or even just volunteering to dropping over 50% of your body weight-I have already "surpassed the $50K mark" on anticonvulsants, plus no form of ketamine that helps is covered, so I PAY FOR IT. On normally $906, but Social Security "informed me the $400 they shorted me wa because I OWED them" for not getting Medicaid paperwork in on time.

Sorry, I was busy being sick.

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