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Sunday, February 12, 2012

WRITTEN INFO ON A PORCATH-SINCE I AM GETTING

Ok, straight up:  I do NOT have cancer--what I have is very shitty veins--for a multitude of reasons, but the main two being MRSA and Vancomycin.  The reason I am having the port is because they can't ever find an IV,  and it's not like treating someone with about 90%+ I am in for the long haul!

I began treatment with a  pain doctor/INTERVENTIONALIST, I am going to be having procedures, which to be perfectly honest, I believe will terminate in an intrathecal pain pump.  My experiences with SCS and TENS units, and the like have been disasterous, and to pacify the doctor (and my insurance company) I will also in all likelihood be getting TPN/lipids through it (which I believe leaves us with multitudes of better options, but in respect to those who do not know what these things are; here ya go:



Portacath Insertion

Patient Information By Dr Eisen Liang 

Please read this leaflet and discuss with your family. Keep this leaflet handy, you might need to refer to this after portacath insertion. 

Why portacath? 
What is a portacath? 
How is a portacath used? 
How is a portacath implanted? 
What preparation is required? 
What are the aftercares required? 
Why the right internal jugular vein is preferred? 
Why is a portacath implanted by interventional radiologist? 
What are the risks of portacath insertion? 
What are the potential problems with port usage? 



Why portacath


A portacath is an implanted venous access device for patients who need frequent or continuous administration of chemotherapy or other therapies as determined by a physician when peripheral access is not feasible or would cause the patient undue distress and/or cost the doctor doing a series or a procedure followed by medication treatment (not necessarily chemo) afterwards. Some drugs used for chemotherapy are often toxic, as can be antibiotics, for example, Vancomycin is rarely given via peripheral line for this reason, as it is also painful; and can damage skin, muscle tissue, and sometimes veins. 


They often need to be delivered into large central vein where the drugs are immediately diluted by blood stream and delivered efficiently to the entire body. 


Cancer patients also require frequent blood tests to monitor their treatments. For patient with difficult veins, (such as myself!!! God, let them leave it in!!!!) it can be used for withdrawing blood for blood tests. 

Using modern technique, the portacaths we have inserted are highly appreciated by patients, oncology nurses, emergency nurses, and doctors. The procedure is easily performed with minimal risk and pain, a very small price for the convenience and safety months and years ahead. 

What is a portacath?

A portacath consists of a reservoir (the portal) and a tube (the catheter). The portal is implanted under the skin in the upper chest. It may appear as a bump under the skin in thin patients, less visible in patients with thicker subcutaneous fat. The catheter runs in a tunnel under the skin, going over the collar bone and then enters the large vein in the lower neck (the internal jugular vein). Since it is completely internal so swimming and bathing are not a problem. The septum of the portal is made of a special self-sealing silicone rubber. It can be punctured up to one thousand times and therefore can be used for many years. 

How is a portacath used?

A nurse can locate the portal between his/her fingers. To administer treatment or to withdraw blood, the skin over the port is sterilized. The port is accessed by puncturing through the overlying skin with a Huber needle. The needle is specially designed so that it will not damage the silicone septum. Blood is sucked back to check if the port is functioning normally. Next, the portacath will be flushed with saline. Then, treatment will begin. After each use, the port is flushed with saline followed by dilute heparin to prevent clotting. 

How is a portacath implanted?

The procedure is performed under local anaesthetic, with the aid of imaging guidance (ultrasound and X-ray) in the angiography suite of radiology department. The actual procedure takes less than an hour. An intravenous sedation is given to make the local anaethetic injection less painful. There will be a skin incision 3cm long on the chest wall for the port pocket and a 5mm incision in the lower neck to enter the vein. Absorbable sutures are used for the chest wound and are buried under the skin. For the small neck wound, sutures are usually not required and the wound is closed with Steristrips (medical sticky tape). 

Typically you can go home two hours following the procedure, when you have recovered from the sedation. You should arrange someone to take you home, as you are not allowed to drive or operating machinery for 24 hours. 

What preparation is required?

You need to avoid solid food from midnight. Clear fluid and medications are allowed up to the time of procedure. If your are on aspirin, Warfarin or plavix, check with your own doctor if these can be stopped for 5 days. You can resume these medications the day after insertion. Insertion is best delayed if you have active infection. 

What are the aftercares required?

For 10 days you need to keep the wound clean and dry, and to avoid strenuous activities of the upper limb and chest wall. If the port is not used within 7 days, you need to return to us for a wound check and dressing change. Otherwise the oncology (or in my case, the pain center) will access the port and change the dressing for you. If you will commence therapy within the next two days, please let us know so that we will leave a Huber needle catheter on the portal ready for immediate access; the home health IV/central line nurse will apply new dressing when you finish the IV therapy session. 

Any issues associated with the wound healing, contact the physician. 

When the portacaths are no longer used, it need to be flushed with saline and locked with heparinised saline once per month to keep it patent. 

If the portacath is no longer required, it can be removed by the physician. The procedure is performed under sedation and local anaesthetic, similar to insertion. 

Why the right internal jugular vein is preferred?

The vein is large and superficial, easily visualized with ultrasound. It runs a straight course towards the right atrium. This vein has the lowest risk of complication associated with insertion and subsequent usage. The left internal jugular vein is the second best. 

Why is a portacath implanted by interventional 

radiologist or general surgeon?

Application of modern imaging technique has made portacath insertion much safer and quicker. The patency of the vein is checked with ultrasound. The best site for puncture and the course of the tunnel are selected using ultrasound, avoiding other veins and arteries in the area. The actual pucture is performed under real-time ultrasound guidance, thus avoiding injury to the adjacent artery. Once the vein is puctured, a guide wire is inserted and its position is checked under fluoroscopy (X-ray). The length of catheter required is measured with fluoroscopy. Finally the function of the portacath is checked by injection X-ray dye. 

What are the risks of portacath insertion?

With modern imaging guidance, the risk of the procedure itself is minimal. There is theoretical risks of blood vessel injury, wound infection, bruising and haematoma formation, and the very remote chance of allergic reaction to the X-ray dye and drugs used during the procedure. 

What are the potential problems with port usage?

Months after insertion, rarely the catheter can be blocked with clots and tissue growth (fibrin sheath). This can be rectified with clot dissolving agents (urokinase). Also very rarely the portacath can be infected. This can be recognized by skin changes overlying the portal. Skin changes can also be due to chemical irritation if chemotherapy/therapy agents if the Huber needle tip is not completely within the portal. Sometimes the port is thought to be infected when you show signs of severe infection yet no other source can be found. An infected portacath need to be removed.




SOURCE:  http://www.sir.net.au/portacath_pi.html

WRITTEN INFORMATION ON PORTACATHS-SINCE I'M GETTING ONE

Ok, straight up:  I do NOT have cancer--what I have is very shitty veins--for a multitude of reasons, but the main two being MRSA and Vancomycin.

Since I began treatment with a pain doc/INTERVENTIONALIST, I am going to be having procedures, which to be perfectly honest, I believe will terminate in an intrathecal pain pump.  My experiences with SCS and TENS units, and the like have been disasterous, and to pacify the doctor (and my insurance company) I will also in all likelihood be getting TPN/lipids through it (which I believe leaves us with multitudes of better options, but in respect to those who do not know what these things are; here ya go:



Portacath Insertion

Patient Information By Dr Eisen Liang 

Please read this leaflet and discuss with your family. Keep this leaflet handy, you might need to refer to this after portacath insertion. 

Why portacath? 
What is a portacath? 
How is a portacath used? 
How is a portacath implanted? 
What preparation is required? 
What are the aftercares required? 
Why the right internal jugular vein is preferred? 
Why is a portacath implanted by interventional radiologist? 
What are the risks of portacath insertion? 
What are the potential problems with port usage? 



Why portacath


A portacath is an implanted venous access device for patients who need frequent or continuous administration of chemotherapy or other therapies as determined by a physician when peripheral access is not feasible or would cause the patient undue distress and/or cost the doctor doing a series or a procedure followed by medication treatment (not necessarily chemo) afterwards. Some drugs used for chemotherapy are often toxic, as can be antibiotics, for example, Vancomycin is rarely given via peripheral line for this reason, as it is also painful; and can damage skin, muscle tissue, and sometimes veins. 


They often need to be delivered into large central vein where the drugs are immediately diluted by blood stream and delivered efficiently to the entire body. 


Cancer patients also require frequent blood tests to monitor their treatments. For patient with difficult veins, (such as myself!!! God, let them leave it in!!!!) it can be used for withdrawing blood for blood tests. 

Using modern technique, the portacaths we have inserted are highly appreciated by patients, oncology nurses, emergency nurses, and doctors. The procedure is easily performed with minimal risk and pain, a very small price for the convenience and safety months and years ahead. 

What is a portacath?

A portacath consists of a reservoir (the portal) and a tube (the catheter). The portal is implanted under the skin in the upper chest. It may appear as a bump under the skin in thin patients, less visible in patients with thicker subcutaneous fat. The catheter runs in a tunnel under the skin, going over the collar bone and then enters the large vein in the lower neck (the internal jugular vein). Since it is completely internal so swimming and bathing are not a problem. The septum of the portal is made of a special self-sealing silicone rubber. It can be punctured up to one thousand times and therefore can be used for many years. 

How is a portacath used?

A nurse can locate the portal between his/her fingers. To administer treatment or to withdraw blood, the skin over the port is sterilized. The port is accessed by puncturing through the overlying skin with a Huber needle. The needle is specially designed so that it will not damage the silicone septum. Blood is sucked back to check if the port is functioning normally. Next, the portacath will be flushed with saline. Then, treatment will begin. After each use, the port is flushed with saline followed by dilute heparin to prevent clotting. 

How is a portacath implanted?

The procedure is performed under local anaesthetic, with the aid of imaging guidance (ultrasound and X-ray) in the angiography suite of radiology department. The actual procedure takes less than an hour. An intravenous sedation is given to make the local anaethetic injection less painful. There will be a skin incision 3cm long on the chest wall for the port pocket and a 5mm incision in the lower neck to enter the vein. Absorbable sutures are used for the chest wound and are buried under the skin. For the small neck wound, sutures are usually not required and the wound is closed with Steristrips (medical sticky tape). 

Typically you can go home two hours following the procedure, when you have recovered from the sedation. You should arrange someone to take you home, as you are not allowed to drive or operating machinery for 24 hours. 

What preparation is required?

You need to avoid solid food from midnight. Clear fluid and medications are allowed up to the time of procedure. If your are on aspirin, Warfarin or plavix, check with your own doctor if these can be stopped for 5 days. You can resume these medications the day after insertion. Insertion is best delayed if you have active infection. 

What are the aftercares required?

For 10 days you need to keep the wound clean and dry, and to avoid strenuous activities of the upper limb and chest wall. If the port is not used within 7 days, you need to return to us for a wound check and dressing change. Otherwise the oncology (or in my case, the pain center) will access the port and change the dressing for you. If you will commence therapy within the next two days, please let us know so that we will leave a Huber needle catheter on the portal ready for immediate access; the home health IV/central line nurse will apply new dressing when you finish the IV therapy session. 

Any issues associated with the wound healing, contact the physician. 

When the portacaths are no longer used, it need to be flushed with saline and locked with heparinised saline once per month to keep it patent. 

If the portacath is no longer required, it can be removed by the physician. The procedure is performed under sedation and local anaesthetic, similar to insertion. 

Why the right internal jugular vein is preferred?

The vein is large and superficial, easily visualized with ultrasound. It runs a straight course towards the right atrium. This vein has the lowest risk of complication associated with insertion and subsequent usage. The left internal jugular vein is the second best. 

Why is a portacath implanted by interventional 

radiologist or general surgeon?

Application of modern imaging technique has made portacath insertion much safer and quicker. The patency of the vein is checked with ultrasound. The best site for puncture and the course of the tunnel are selected using ultrasound, avoiding other veins and arteries in the area. The actual pucture is performed under real-time ultrasound guidance, thus avoiding injury to the adjacent artery. Once the vein is puctured, a guide wire is inserted and its position is checked under fluoroscopy (X-ray). The length of catheter required is measured with fluoroscopy. Finally the function of the portacath is checked by injection X-ray dye. 

What are the risks of portacath insertion?

With modern imaging guidance, the risk of the procedure itself is minimal. There is theoretical risks of blood vessel injury, wound infection, bruising and haematoma formation, and the very remote chance of allergic reaction to the X-ray dye and drugs used during the procedure. 

What are the potential problems with port usage?

Months after insertion, rarely the catheter can be blocked with clots and tissue growth (fibrin sheath). This can be rectified with clot dissolving agents (urokinase). Also very rarely the portacath can be infected. This can be recognized by skin changes overlying the portal. Skin changes can also be due to chemical irritation if chemotherapy/therapy agents if the Huber needle tip is not completely within the portal. Sometimes the port is thought to be infected when you show signs of severe infection yet no other source can be found. An infected portacath need to be removed.




SOURCE:  http://www.sir.net.au/portacath_pi.html

On HIATUS

I am on hiatus today.

Feel shitty; right leg is cramping like mad.  I want to scream, and I need to wrap myself in low heated electric blanket hopefully it will stop the screaming pain.

Some more RSD Photos--I do have hand involvement, so they'll get to my neck; but the lower body is way worse off.

These are from this month--at least Lady luck left my dominant hand alone-so far:

1 hour before diazepam (only muscle relaxer that's liquid)

2 hours later

Could be worse, maybe?  For Heaven's sake, I pray it doesn't get any!!!  My mom could move closer.  URGH!!!!

Friday, February 10, 2012

OUT SICK


I am out sick today.  Have had a blinding migraine.

My apologies, 

Sincerely,
The Management

Thursday, February 9, 2012

MY PLANS FOR TODAY: LSB (VIDEO IS SGB, BUT CONCEPT IS SIMILAR)

THIS IS MY PLAN FOR TODAY:



I will probably need some time to recover, but  am wondering if he uses midazolam or ketamine as in the video.
We'll see!

Wednesday, February 8, 2012

IT'S FOR REAL, DUMBASS!!!!

It is worse than you think;
Here's my own story;

--------------------------------------------

When watching my videos-I do have bipolar disorder (though it's in FULL remission, I also have a mixed ADHD that cannot be treated because of my RSD, as stimulant medication  would cause the nenrves to fire even faster---and I cannot handle even the thought of the pain being worse than now; I want to get better, and I do rant, and rmble, etc.  I don't mean to, but it's just me......

 



IT IS EVERY MINUTE, NOT
FOR 1 HOUR
24 HOURS A DAY.
7 DAYS A WEEK.
30/31 DAYS/ MONTH.
52 WEEKS A YEAR,
365 DAYS A YEAR;

IT'S COMMONLY A LIFETIME PROBLEM; 
IT'S CALLED "LIVING WITH SEVERE INTRACTABLE 

BREAKING THE CYCLE IS POSSIBLE 
AND IT SOMETIMES, AS DISAGREEABLE AS IT SOUNDS TO 
MANY, MAY INVOLVE USE OF 
PAIN MEDICATIONS--AND NOT TO "PACIFY THE PATIENT:"
BUT TO STRESS IS THAT MEDS ARE THE SMALLEST  PART OF THE REGIMEN:
THINGS THAT HELP AND EVEN IN SEVERE CRPS/RSD

Meditation,
stress managementSelf soothing such as with biofeedback
accupuncture/accupressure
light tissue massage
Aquatic therapy in a heated pool
yoga (let the pain guide you-don't "live to regret it)
walking; stair climbing
distraction-for me: movies, reading, and drawing
visualization, progressive relaxation
Relaxing music.....

It's not a cure, I will never be "free" of the burning pain;

It's Fire and Ice.

I guess that's how it is--for now

FOR ME


BUT OTHERS, READ THE FLOWCHART:
We are all different; 
We are all Unique
But one thing in being your own advocate (because few are going to do it for you: DOCUMENT-TAKE PICTURES; BUT beyond that:






IT HURTS, DAMMIT!!!
The doubt
The odd looks
The accusations
The assumptions.........
The needless suffering. 

For example, the other day, I called 911, and the paramedic saw my pain protocol, and asked if I could have taken too much ketamine?  FUCK OFF!!!  My blood sugar was 54 you fool, the hospital were the ones who managed it with an ampule of D-50% asshole!

Tuesday, February 7, 2012

AND THE RAW MEAT ON MY FOOT WAS BECAUSE OF , ahem, WHAT???? Gosh, I can't stand them thar dumbasses!!!

Worse yet, the REAL blame isn't even hers--it's my former PCP!  Because when I started having problems with nutrition, the stupid cow did not treat it properly!!!  Am I angry?  Yeah--you bet.  Just because I was a bit heavy from before the surgery (as i was laid up from cracking my tailbone); I had to push through pain at the hospital that ended up doing more harm.

So I was overweight (in their eyes) before my surgery.


(Please excuse my language)


When I lost 50 pounds over a 3 month period, no one batted an eyelash, SHIT THEY CONGRATULATED ME!!! And then they are all shocked this happened.

DON'T GET MAD: GET EVEN!!!

Well, being poor and creative has it's advantages: I made a high protein shake--I make 2 liters at a time, which lasts for 2 days, and if that is ALL I eat, heck, it's nutritious, and a far sight cheaper than Ensure ($40/case at Costco, and they wanted me to drink 4 a day? That'd last 10 days!  Anyone got $120/mo laying around these days?  Nah, me either)

And you just need a blender, NOT Montel!


  • 3-4 packets of Carnation Instant Breakfast (they tried to say  drink 4 of those-they come 10 to a box!)
  • 24ounces WHOLE MILK
  • 1/2 cup walnuts (if not allergic)
  • (add what you like--I threw in some brown sugar--I like the flavor and though those calories are empty they are adding to it)
  • 3-4 scoops of soy protein powder.
  • The soy isn't "ruined" by the dairy-heck, the two can compliment-and desperate needs call for desperate measures....


So I intend to show the lady that today too, that I am keeping up the nutrition with limited resources I have.

What sucks, is THEY screw up, miss the malnourished state that I felt too rotten to pay attention to, and now I'm suddenly being treated like a child, who practically has to show she knows how to wipe (pardon the expression)?

I say, ahem (ladies may plug your eyes): FUCK OFF!!!


I ordered a pair of crutches I think will work way better for me, and I will paste the link here--I have problems with wrist pain and tendonitis and I can't do much, not with the traditional ones--the grip goes straight out.  But they are sent FedEx, and what's awesome?  For one, the armpits are saved.  For another I was charged only $9.99 for S & H.